camping oct. 2009

camping oct. 2009

Brendan is my rock

Brendan is my rock

me and my boy

me and my boy

Tuesday, March 23, 2010

Back to Life, Back to Reality

Well, spring break is over and the routine is back. We had a great time over break: lots of park time and playdates with friends; staying up late to watch TV with mom and dad; gym time and laid back fun. On Monday Liam looked at me a little confused when I woke him up at 630 for the bus, but he is happy to be back in the swing of things.

It's the end of March, but his school finally found a replacement teacher to relieve the sub, Mr. Johnson. She is a grad student in special ed, finishing up in June, and she is hosting an open house on Thurs. Communication notebook back in force...too bad this structure will last only until school's out in May, and then it's time for new transitions all over again.

Liam continues to make huge strides in his spontaneous speech. Yesterday he got home and said " I am hungry I want to eat a snack please" on his own, without my prompting for missing words. He was talking about girls playing on the playground - when I asked him questions his answering clarity was precise and focused, with good eye contact and little repetition. Example: "Honey did you have fun playing with the girls at recess?" "Yes I had fun, girls hugging on the playground with Liam go play." We're talking pronouns and prepositions, people! This is huge!

He has started private OT again, and I found an awesome center (kind of a drive from our house in Tempe, but hey - that's the story of our lives) for Hab and Respite. We are about to embark on a family odyssey/vacation to Puerto Rico for Devon's wedding, and any anxiety I used to feel about taking Liam to new places has all but evaporated. He continues to demonstrate a comfortability with himself and an openness to embrace change, which gives me great comfort and great hope.

Thursday, March 4, 2010

hitting the wall

Do you ever have a day when you think "this cannot possibly be my life?" I had a moment or two of these thoughts earlier in the week, but this afternoon makes me want to go in my room, shut the door, and tune everything out.

I know why I have put off getting passports for my kids until today, the last DROP DEAD day to do it. We leave for PR in one month and I am really pushing it, getting them done in time. We waltzed into Walgreens as soon as Liam got off the bus - thinking I'd be in and out. No stroller, cart, or snacks.

Trying to get my kids to 1) sit still and 2) look squarely at a camera while getting their pictures taken is not easy. Never has been, and i don't know why I thought this would be different. The lady had to try twice for all of them - with Liam being the toughest of all. A snapshot of the mayhem:

-Aedan ran down an aisle, shorts around his ankles;
-Audrey screamed at the boys to "hocus!" (her word for FOCUS);
-Three bags of chips and three Vitawaters were opened;
-The photo clerk started to sweat and stress
-Aedan almost ran out the exit
-Audrey pulled the tags off a doll before i could stop her (while I was trying to help Liam "hocus")
-Total bill: $45 (25 for the pics, $20 for the pigpen disaster of food/drink/toys left in our wake)

Now I hate feeling like an out of control, pushover mom. I try so hard to set boundaries and rules, but the fact of the matter is: Liam has autism, Audrey can be obnoxiously bossy, and Aedan doesn't listen. He acts more like he's turning 2 than turning 3 in a lot of ways, largely because I have allowed him to get away with it.

When I went back to get the pics after gymnastics, while my throat was seizing up from stress, the clerk - a new one - started talking about how she's a special needs child advocate and has a child with a rare disorder. Why in the H, I thought while nodding politely, would she tell me this?

Turns out she could tell, from developing Liam's photos, that he has autism. I heard this and I just wanted to bury my head in the bags of chips (after eating them all). It's one thing to deal with autism on a daily basis, the struggles and successes. It's another for it to be transparent on Liam's face when he's not having a good moment - to the point where a perfect stranger looking at his pic can tell.

I am on hCG, trying to teach a course I have never taught before, write a column, and manage all the loose ends of getting ready for our trip. My house: trashed; my purse: disorganized; my hunger: intense. All I can do is take a deep breath and know that all the things that make me ME, my successes and my strengths, also challenge me to recognize and overcome my weaknesses. I am laid back, fun and disorganized...of course my parenting is going to be similar.

If I can't find some humor in these out of control moments, I may as well just throw in the towel. Audrey just came over to me with her cute and earnest face (to her credit, at Walgreen's she did get it together after my threats of "we can't go to Auntie Devon's wedding if you don't sit still and take a nice picture!" sunk in) and asked "are you okay? mom are you happy?"

Of course I am, baby. Challenged and out of control at times, but ultimately happy through and through.